Briefly observing the world with Alzheimer’s eyes – a daughter-in-law’s journey

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What do you see when you look at this picture?

What do you see when you look at this picture?

“GAW! That was the craziest thing I’ve ever seen!” exclaims my passenger

It was my first time being the driver.

We were running errands and making small talk

Overall, I’d say the time together was nearly delightful

But deep inside me, I was sweating

Try to act nonchalant and easy-going

(Two things I’m not really known for)

So when he exclaimed about the things he saw on the street

I asked him in a very comfortable fashion,

“What did you see?”

And that’s when he says,

“I just saw a house without a roof, smoke coming out of it on top of a grave.”

I gulp…

It’s August

In North Carolina

There are no Halloween decorations up yet

And there is no house without a roof with smoke coming out of it

Over a grave

My heart broke

My pulse quickened

La-dee da, dee da dee da

“Don’t freak out,” I say to myself and we go merrily along the way.

Since Friday, my mind has turned like a whole organic, antibiotic-free chicken on a rotisserie

So today I drive back to that stretch of road

And I take a walk with my camera

W7J9L7Fdbld6DBBp_gomz-GJi-iP196ZexHRe57w9EcI try to look with brain-diseased eyes

This might sound bothersome but I have to figure this out

Then I spot two structures on the street that might fit his description

I know what he saw!

And I get it

With brain-diseased eyes, these buildings look as if they don’t have roofs

I imagine this being a very scary sight.

I imagine this being a very scary sight.

The trees might look like smoke

So could the clouds billowing in the sky

And the grave,

XOhNO0O45NoWuqL7frli7PETNf0fythdsQ_g1W-gkX8

I surmise it’s the office building sign

Strangely, I feel better

Because for a fleeting moment

I have entered his world and a piece of this horrid puzzle fits

I drive away and make a mental note

Scared…fearful…thankful…sad.

Question: Have you ever tried to unlock a brain mystery like this out before? I’d love to know!

Rhymes with “witch” – a daughter-in-law’s journey

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A tender-hearted olive shoot and grandson

A tender-hearted olive shoot and grandson

Under his breath, he muttered the word that rhymes with witch but starts with a “B.”

Only one person heard it

My youngest son

We were going to a wedding in Indiana

I was in the passenger seat, clueless, in a celebration dress

Quite honestly, I was being silly

It had been a stressful day.

But after the nuptials, on the way back to the hotel,

My youngest olive shoot says he’s in massive pain

Really sick, violently ill

We go to urgent care because Ike’s abdomen is cramping

And that’s when I learn the burden he had been carrying

Of course he felt sick to his stomach!

I mean what do you say or do when your grandpa calls your mom a cuss word and you’re the only one who hears it???

That incident happened three years ago and I’d be lying if I told you this didn’t create a rift between him (not my son, of course!) and me. I knew we couldn’t confront him about disrespecting me and putting our teenage son in a very awkward position. So we have sucked it up.

But I have kept my distance not to be hurt again. Plus I haven’t wanted my sons to feel that kind of slicing pain.

"Heavenly Father, sustain us all during this time of great suffering."

“Heavenly Father, sustain us all during this time of great suffering.”

But now here we are

The man has a brain disease

And he needs me.

So does my husband.

I can only do this because of Jesus.

Left to my own selfish abilities, I would have given up. I bruise easily.

But through Christ and with some distance and education behind me, I think that moment was just another sign that there has been a growing problem.

And that man who called me the word that rhymes with witch but starts with the letter “B.”

Guess what I’m calling him now more than I ever have done in my over 25 years of marriage?

I’m calling him

Dad ❤

You need a thick skin for Alzheimer’s, so what am I to do?

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It is heartbreaking to find old pictures destroyed in the trash.

It is heartbreaking to find old pictures destroyed in the trash.

As this ignoble journey through Alzheimer’s plods on,

I look up at the photo bulletin board in his kitchen

And in the last few days,

The picture of the Hubs and me

Has been torn up

And in our place

Stands the business card of the exterminator!

Ouch

At first I laughed…

But then it felt like a wasp sting in my heart

Pictures of the Hubs and his dad have been ripped up recently

Thrown in the trash

And I told the Hubs, “It’s ok. He doesn’t mean it. He loves you.”

But then it happened to me and instead I sadly said,

“I’m going to need to work through this.”

I can handle cleaning poo off the toilet seat rims,

Cindy versus poo,

I always win

20130824-180520.jpg

The miserable evolution and emotion of the bulletin board. I thought it would be something that brought him joy. I put it up for remembrances. Now I just want to forget I even bothered.

But crud muffins, being downgraded from the exterminator

Come on

Really?

Whoa

Oh, Brain Disease, if a picture of YOU were on my bulletin board

I’d replace you with a 8×10 PICTURE of MY exterminator

Now, Brain Disease, you know how we feel…

Five minute Friday – last

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We are a good team doing a very reluctant task.

We are a good team doing a very reluctant task.

I have fallen into a black hole of despair

Beyond depression

This abyss

Has left me wondering where I went

But I’m not the one with a brain disease

So it’s weird…

Sometimes the Hubs and I feel like we’ve lost our minds

While caring for someone who is losing his

It’s the last thing I want to do

photo copy 3But oddly enough, it’s the first thing I want to do because I have no choice. And I love him and I know it’s the right thing even though Alzheimer’s is the last thing I would ever wish on a person.

Comfortphoto copy

Encourage

Problem-solve

Discover

Feed

Understand

Restore

Calm

Those are first places in my heart

But here I am doing the last things

Removing rotting food from a fridge

Counting pills to help prevent a medical emergency

Cleaning poo off a toilet seat for the millionth time

Being afraid of what’s going to happen next.

Abba, Father!

There’s so much more…I’ll save it for next time.

So what does the word "last" make you think about? Join this writing community and share! You'll feel better, trust me!

So what does the word “last” make you think about? Join this writing community and share! You’ll feel better, trust me!

Remembering a Ranger – a message of wisdom and service – thank you, Colonel Kail, RLTW

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photoIn January, my son sought advice about Ranger School from a man he trusted who had been there, done that way back in 1998. (Massive understatement)*

At the time, Nathan had no idea how treasured this email would become only six months later.

On July 24, 2013, Colonel Eric G. Kail passed from this life into eternity with Jesus after a valiant fight with transitional cell carcinoma. Amidst tears of sadness, Nate, the Hubs and I were reminiscing about Eric’s impact on our lives. During that phone conversation, our son casually mentioned this email and began to read it to us.

With my (now) Ranger’s permission, today I share this email as a sort of eulogium to a great man. Even if you’re not in Ranger School, my hunch is you will appreciate the insightful words written by a man of great honor, Christian faith and wisdom. Eric would get a kick out of knowing he was featured again in my blog! He was always such an encourager.

Here’s the email…

Nate,

Congratulations on all you’ve accomplished so far, and for snagging a Ranger School slot. Thanks for asking, here’s my two cents.

1. Ranger school is not fair, nor are the people who run it. I don’t mean that negatively, but rather just as a fact. I saw far better soldiers than me not make it through the first week due to injury and some were even picked on and singled out until they quit.

2. Try to learn something about yourself everyday and acknowledge the work of your peers. No one likes an overt cheerleader who comes across as trying to get the squad to like them. However, quiet and man-friendly encouragement goes along way.

3. Consistency is key, especially when you are member of squad and not the patrol leader. Spotlighting is only working hard when you are in charge, and it is an ugly thing.

4. Remember the school is designed to get you to your worst point, and then deal with it. So, things like packing list changes and last-minute fragos are by design and not something you should ever let get the better of you.

5. You’ll have moments and days when staying at Ranger School is the last thing you want to do. Two things help. First, always find something (never someone else) to laugh about. Second, you’ll spend your entire army career helping soldiers over come hardship. So, learning how to pull yourself out of despair is a good skill to acquire.

6. Never feel sorry for yourself, although you may want to daily.
Keeping a journal of just a few comments or bullets each day will help you reflect on this when you are back in the real world.933882_621564467863032_1204880649_n

7. Enjoy becoming a dangerous and competent man, but not pridefully. Our society is too quick to put sweater vests and choir robes on Christian men and to domesticate them into mediocrity. We need strong warriors who understand unconditional love and possess the will to manage violence in our defense.

8. Most, if not all of the learning you will accomplish is about yourself and your failures while in Ranger School. You’ll learn some cool stuff, but more than anything you’ll learn the value of never quitting. I had to remain in the elevated push-up position for two hours one evening because some instructor wanted to get an LT to quit. Two hours seemed like an eternity then, but merely a blink of an eye now. Funny thing, I ran into that instructor years later and we had a good conversation on my terms. He was a small, angry man inside and out.

9. On your worst days, remember that your future soldiers and NCOs are counting on you to finish what you completed. Don’t worry if you get injured, that happens to the best of them. But when you show up with your tab, your soldiers and NCOs will know that at least you finish what you start.

10. Soldiers only want to know one thing about you. Will you take care of them or drive them like a rental car. Completing ranger school tells them up front that at least you know what it feels like to be driven like a rental car and are less likely to do it to them.

Hope this helps. I’m very proud of you Nate.

photo copy 3

img_2250* By the way, Colonel Eric Kail was Ranger certified in 1988. He also did some other awesome things like marry a wonderful woman, have two kids and other important things like get a Ph.D. and publish a series on leadership in the Harvard Business Review. Eric served for over 25 years as an Army Field Artillery Officer in both conventional and special operations units. He has several combat deployments, including Operations Desert Shield, Desert Storm, Enduring Freedom, and Iraqi Freedom. Among Eric’s awards include the Bronze Star Medal with “V” Device for Valor. While our family knew Eric as a close personal friend, Eric was most recently the course director for military leadership at West Point.

On behalf of my entire family, Eric, you will be missed but we mourn not as those without hope (1 Thessalonians 4:13-18). See you soon, Colonel Kail.

Other blog posts you might want to check out:

From a West Point grad – written with love and in honor of Colonel Eric Kail

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I met COL Kail while I was just in middle school at Apex Baptist. At that time I had no desire to join the military, wear a uniform or take orders. I just wanted to be a normal guy with freedom and a regular college experience.

You know that saying that says the easiest way to make God laugh is to tell him your plans?

Well I guess God was laughing when I told Him that because I eventually ended up becoming a cadet at West Point. In a strange set of circumstances, the Kail’s had been sent to Korea last moment only to come back to West Point during my time as a cadet.

162938_10150100327385379_7643059_nAt that time I knew he was a good man, but I didn’t know him. As a cadet I went over to the Kail’s house for a little R&R and was able to get to know the family better. What I found was that weren’t just nice, fun people.

They were (and still are) amazing people.

COL Kail especially impressed me because I saw how he interacted with others professionally around campus. I still remember talking about our leadership class with other cadets and they said, “My instructor’s amazing-COL Kail is the man!”

540225_10151141079026038_1658347826_nThey didn’t just think he was cool however.

It was evident that they had a deep respect for him.

One of my friends was amazed that COL Kail already knew the names of his students before they came in. He had memorized them before they ever stepped into the door. That kind of attention paired with his confidence, charisma and humility made cadets (myself included) opened us up to share about ourselves and to learn from his experience and example.

Although COL Kail never formally mentored me, I count him as one of my mentors. His example has inspired me to be a better Army officer, and more importantly a better man and follower of Jesus. Ever since we all found out COL Kail had cancer it always seemed like he and Mrs. Kail were the ones comforting everyone else.

IMG_3623I have been inspired by their abiding trust in the Lord and their belief that God works everything, even things like cancer out for His good and His glory.

That kind of example has been powerful for me to see and I am not the only one.

As I continue my Army career I pray that I may love my future soldiers like I could tell COL Kail loved his.

I pray that I may have faith like him and I pray that I may be a mighty rock for my family one day as he has been for his own family.

I am proud that COL Kail is my friend. And no matter what happens in my own life, I hope that I may be able to set an example as COL Kail has for his family and for everyone around him.To the Kail family, may God bless you and give you peace. You are an inspiration to us all.

John 16:33 “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”

Respectfully yours,

Nathan Winter-Hartley
USMA ’12

Seeing Nate for the first time after completing Ranger School

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No sooner had we arrived at our hotel near Fort Benning, when Nate called to check on our travel schedule. We had just put our bags in the room and the Hubs and I begged and pleaded to see him immediately!

2013-07-10 15.57.58

After all we had been through – the driving, the praying, the waiting, the stress, the letters, the gum, the recycling, followed by the driving, the praying, the feeding, the laundry, the eight-hour pass, the stress, the care package, the recycling (twice), etc., we deserved to see this guy, don’t you agree?

Twenty minutes later, we were hugging our Soldier. Considering everything he had been through during Ranger School, our boy looked great. We learned later that the men are well fed and hydrated before we get to see them. My mama’s heart quaked at the thought of seeing him emaciated and zombie-like. Instead, we were able to enjoy conversation and see that his spirit was still very much intact after the Ranger experience. His waist looked smaller but he didn’t have a sunken chest or hollow eyes which was something I really dreaded.

Perhaps the only glimpse I had of him not being in complete reality was when I asked him to take this picture. Had my Soldier been his usual self, he might not have stood in front of the car and posed for a few shots with this sign in the background.2013-07-11 16.20.58

Yes it’s super corny and if the tables were turned, it would have probably annoyed me when I was his age but Nate indulged my parental pride.

Careful to not push it too much, I did, however ask permission before I told our server at the restaurant that he was dealing with a Ranger. When Nate said, “NO!” I refrained and just prayed for an opportunity to casually mention the fact.

Turns out, I didn’t have to force it because soon enough, we learned that our server was a former Ranger who had been injured while serving his country. There are many broad-shouldered military types in the Fort Benning/Columbus, Georgia area.

Nate’s brothers and a family friend were on their way to celebrate this milestone. In my next post, I’ll share some reflections on that special time.

RLTW!

Btw, if you want to read an actual Ranger’s account about the experience, click here!

$40 or $60? We have our answer and it’s good

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We got the news!

$40 ATM withdrawal!2013-07-07 14.48.02

It is a proud and significant moment in our Soldier’s life. He did all the work, we have merely been behind the scenes cheering him on but I’m telling you, it does feel like we ALL accomplished this tab. 

Nate began this journey in March with the hopes of being done by May. That’s not how it went down. He got recycled in Darby for five weeks, while there met a rat, passed the mountain phase but then he recycled swamps. He will graduate this Friday among his buddies, graduating class 7-13. It will be surreal. Nate will introduce us to the guys he has come to love and admire. I can’t wait!

Good thing we don't have smell-a-vision on this blog. My boy hadn't showered for 10 days, can you imagine?

Good thing we don’t have smell-a-vision on this blog. My boy hadn’t showered for 10 days, can you imagine?

Over 140 days of arduous training is complete and now the stories begin.

Thanks be to God for the good things He has done! My Soldier heeded the word’s on his cap and now we will learn about the cast of char- acters that made his Ranger School time unique, hilarious and irritating as heck. They will never forget this time together. What a feeling that must be.

As for me, I shall never be able to walk by a Soldier in uniform with a Ranger tab and not stop and say something. Especially this Ranger, Colonel Eric Kail. I’ll probably also burst into tears. Oh to put my arms around my boy in a few days, to see that tab on his sleeve, what a moment that will be.

Our hearts are with all the guys and families who have endeavored on this journey. Bless you all! RLTW!

Tomorrow’s a big day – final results of Ranger School

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photo copy 8We are anywhere from 12-24 hours away from hearing the big news about our Ranger School student.

Did he pass?

Did he not pass?

I cannot even bring myself to use the other word for not passing.

I suppose you can feel my heart beating straight through this blog.

Thump-thump thump-thump thump…

Oh, if I hadn’t had that cardiac ablation a few years ago, I think this ticker would really be giving me fits.

We await the hidden message –

$40 ATM withdrawal – my Soldier got his tab

$60 ATM withdrawal – he didn’t

Whether it’s my physical heart or the mama one that the Lord fashioned me with 23 years ago upon learning I was pregnant, I’ll never get used to this waiting stuff. It doesn’t suit me just like these wrinkles in between my forehead and the other daily assaults endured by many a middle aged woman.

Nate’s been through two recycles (Darby and swamps) and this is his last chance to pass. We await him with open arms and gifts either way. Tears of joy or pangs of sadness, oh my, I don’t even know what to expect.

All we know for sure is that his days of

  • getting 2-3 hours of sleep
  • eating MREs in 30 seconds
  • having a core body temp of 104 degrees at least once
  • trudging 800 meters through the Florida swamps
  • then marching 9 kilometers to his patrol base at night
  • followed by 17 more kilometers to somewhere else
  • while carrying 80-100 pounds on his back
  • at two in the morning
  • being away from communication and contact with loved ones
  • for over 140 days

these things will be over by this time next week.

A new life chapter will begin.

As we await this news, I’m clinging to these verses.

Oh how I love this child.

Oh how I love this child.

For you created my inmost being; you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.

My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth.

Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be. (my emphasis) 

How precious to me are your thoughts, God! How vast is the sum of them! – Psalm 139:13-17

$40, $60…thump-thump-thump…RLTW. Either way, we love you Nate. More soon…

Five minute Friday – beautiful

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A few members of my beautiful, imperfect, in process people I call my family.

A few members of the beautiful, imperfect, in-process people I call my family.

Beautiful doesn’t mean perfect –

Cindy Crawford is outwardly perfect

Cindy W-H (me) isn’t…

So when I reflect upon my life

There are plastic times when things on the outside might have looked good or better than they do now

But they were hideous had you looked much deeper

Families are beautiful but a lot of effort

Searching for sparkly pretties in a heap of ashes – much effort required

It is messy work, I have been warned

The pastor said something the other day that has resonated with me profoundly this week –

Here's something imperfect and not so beautiful. I had a few unbeautiful moments when I discovered this in my fridge.

Here’s something imperfect and not so beautiful = sideways milk. I confess I had a few unbeautiful moments when I discovered this in my fridge…

Just remember the people you are with, they are in- process too.

And he said this too, which I wrote down because it sounded so good.

Life for those who love Jesus is not like a Russian novel that just ends in horror and despair. It has a purpose that will work together for good, the Lord’s process. “Remember,” my pastor said, “that He’s strip-mining you, He’s designed us to live through struggles, pain, confusion, weakness and suffering. Your relationship to God determines the meaning of your life.”2013-07-04 10.45.52

Something beautiful will result for those who love Jesus – we belong in the next world. This isn’t science fiction. This is promise.

Father, I seek to appreciate the beautiful, imperfection of this earthly home and can’t wait to see all the treasures and sparklies in the world ahead.

5minutefridayThank you Five Minute Friday for giving me a chance to write about this word! Check it out and join the writing explosion!