Darkness and light

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On Sunday, I had a dream. I was crying in the dream. When I woke up, I was still crying. The attractive sleep mask I wear to bed was damp with tears.

It was another sad reality. The Lord is the only one who can help us manage our sorrow and pain.

A test that was performed. It was heartbreaking to see these results.

A test that was performed. It was heartbreaking to see these results.

My waking hours have been anguished. Over a month has passed since we have seen my father-in-law. He has been diagnosed with moderate vascular dementia and Alzheimer’s. My brother-in-law lied to us about having Dad come visit him for a vacation and now he’s saying he wants to stay with him. Appallingly, he denies that anything is wrong with his father.

Now isolated by his oldest son from all the rest of the family, we are told he and his son want no further contact from us. After four years of welcoming him into our home and heart, it is a devastating blow to our family. How can Dad just walk away?

When we have attempted to call the available phone numbers, it is apparent the person on the other line abruptly hangs up the phone. This has been the case as each one of our children have also tried to speak to their grandpa. Can you even imagine?

2013-07-22 19.31.31-1“Um, ok,” you say as you continue to read this post.

Why is she sharing this?” you wonder, understandably so. 

(Btw, the Hubs has given me approval to share).

As bad as the situation is (and it’s bad), God is doing something.

Several years ago, I sliced my finger on a can of mushrooms. We were  getting ready to eat dinner. The Hubs was outside grilling chicken when I screamed for his help.

The cut was so deep on my middle finger, it was obvious a little band-aid would not suffice. We rushed to the hospital and there was a concern that I had sliced through bone or a tendon. When I went to the emergency room, grasping my finger to control the bleed, at one point, the physician needed to see the cut. Reluctantly, fearfully, I opened my bent finger to let him look inside.

This is what is happening to me right now.

A wound is being torn open and examined. I am both nauseated and afraid at extent of my injury.

As my finger was stitched up, I knew it would mend.

In this case, the Great Physician looks tenderly at my wound. He sees the gushing blood and the pain. Frankly, I’m utterly woozy and dizzy from the rejection and suffering. Then I am reminded, His loving arms surround me/my husband/my tender-hearted olive shoots.

I’m someone who has had her fair share of “men” issues. This crisis  reminds of the many other men who have rejected my affections. Some of them never deserved my affection in the first place.

Others, had a logical reason to love me…

I was related to them.

Yet there still was and is great disappointment in how that love wasn’t and isn’t manifested towards me. I imagine some of you might empathize.

I sometimes wonder, does this earthly father miss us? Does he ever think fondly of his other two sons, his five grandchildren and his adorable great-grandchild? Does he remember the meals I prepared for him, the holidays we shared, the care and kindness we extended to him? Is all of this happening because of two horrid degenerative terminal brain diseases or is there yet another evil force at work? In a lucid moment, is it possible that he feels a measure of regret for walking away from us? Does my brother-in-law, this urchin of a man, ever sense guilt and regret over his actions?

The answers to these questions are unknown. I can speculate and pray. Some of them might be revealed to me but it’s doubtful.

So I lean on this TRUTH.

2013-06-01 11.02.08-11. The Lord will heal me eventually. This jagged wound, it will take time to recover. He chose to open this wound and clean it out. We will grieve but we will press on.

2. God is my Hope. He is my lovebeam.

3. Our suffering is not in vain. Though it’s hard to imagine, the Lord will accomplish a purpose through this dark trial.

4. My Heavenly Father is the only man who has ever been 100% reliable, dependable and trustworthy.

5. The Hubs, my three olive shoots are currently tied for second place.

6. The Lord will not waste this hurt. His specialty is restoration. What was meant for evil, God will use for good.

7. There are blessings mixed in and I must be attentive to them.

This beautiful song sums it up. The tears keep falling. Thank you for praying for my family. ❤

Five minute Friday – She

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When I walked down the stairs at the missionary house five years ago

She caught my eye, took my breath away

“Wow, she’s so pretty!” I thought to myself.

All of us at the girls' prison in El Salvador

All of us at the girls’ prison in El Salvador

Then I went to the girls’ prison in town

And she acted as my translator as we spoke about redemption, purity and freedom in Christ

“I love her heart,” I thought to myself as we both openly wept at the beauty of the moment.

Then my oldest son began speaking to her

He, a cadet at West Point

She, a college student in El Salvador

And soon enough, they began to fall in love

Two countries away, a romance and a host of many obstacles

They have persevered

And on Sunday, in this beautiful tropical land

He dressed up in his finest, heart beating like a drum

What a moment!

What a moment!

He reserved a table at Ruth’s Chris in downtown San Salvador

And when the waiter brought out the creme brulee, there on the plate

Even though they spelled it wrong, she understood! What a sweet memory in every way!

Even though they spelled it wrong, she understood! What a sweet memory in every way!

She read a life-changing message!

Even though there was a typo since English is not the first language of this country

995474_10151567058450059_296521023_nShe became more than the pretty girl I first met in a faraway land

She was elevated from just being my son’s bonita, his girlfriend…

She became my future daughter-in-love…

Join us at this writing community and share!

Join us at this writing community and share!

My son’s future wife ❤

She said, “YES!”

I could write more but I was only given five minutes! What do you think about the word “she”?

Big news in our family – something happy for a change

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My boy and his girlfriend

My boy and his girlfriend

Yesterday I used a word I have never used before.

It was a word I prayed I would use one day.

Like, I really did pray to Jesus about using this word.

I remember praying with my son throughout the years

When I tucked him in at night or

During casual conversation in the family room and

Around the kitchen table before dinner

This word has always provoked a sense of wonder and anticipation in our boys.

My boy and his fiancée

On Sunday at a fancy restaurant in San Salvador, El Salvador, my oldest olive shoot, my Soldier, my West Point graduate, my Ranger, my Sugar Boy asked his beloved to marry him.

She said, “yes.”

So yesterday I no longer referred to Lu as Nate’s girlfriend

Around 4pm during a very serious meeting in Raleigh, the Hubs and I spoke about a very happy moment as we were talking about a very sad one

Then these words flew out like a butterfly in the sky,

“my son’s fiancée.”

The air in the room grew lighter for an instant

photo copyAnd I felt a smile in my heart

A fresh and joyful moment, most welcome and healing to my soul

Their love story is such an adventure, your heart will smile as well

That incredible day, the one we have prayed about for so many years has finally arrived

My son has a fiancée, I have a future daughter-in-love!

Five minute Friday – worship

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IMG_4986Before having my three sons, I don’t really remember meeting any boy who had an active, living, breathing faith.

I knew guys who went to church and performed a variety of religious sacraments

But it all seemed shallow

And I could relate

Because my spiritual practices were very superficial as well

Today, it’s my ministry-minded middle’s 19th birthday

And ladies, let me say he is a cutie (he also has a serious gfgf so he’s taken!)

wh1My superbaby is a reader of unusual books, uses quotes from great Puritan leaders with wild abandon

And he prays fervently, thinks passionately and feels the strong call to be in ministry – I am in awe

What brings me to tears though is his heart for worship

Aaron is a man of imperfection just like the rest of us

But the purity of his surrender and dependence on Jesus

Sometimes I look at him with fascination

He has a faith that is unashamed

His devotion to living a holy and righteous life

Are evidence of his worship to the King

And that’s not something you typically see in a 19-year-old.

They often worship other things far less honorable…

So what does the word "last" make you think about? Join this writing community and share! You'll feel better, trust me!

So what does the word “worship” make you think about? Join this writing community and share!

Today I rejoice that the Lord has blessed me with this child who has a true heart of worship and a love for Christ.

Today I ate two donuts, don’t judge – a daughter-in-law’s journey

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Take that Alzheimer's!

Take that Alzheimer’s!

Before 9 am,

I had an argument with my husband

I had an argument with my freckle-face, orange haired olive shoot

Contacted the 24 hour help/crisis line at the Alzheimer’s Association, again

I stressed about an impending, almost certain family conflict regarding care management of our loved one with a brain disease

I learned my ministry-minded middle’s bike had been stolen in Chicago

And I had not one but TWO donuts

A Boston creme and a marble chocolate/vanilla swirl one

You got a problem with that?

I didn’t think so.

Then I called my mom who listened without judgment

And I texted a friend who met me for lunch

And biked nearly 12 miles

While sweating

And talking to Jesus

Because I’m talented like that

Today's truism. This is the note attached to the container of cookies. I'm only showing the note NOT the cookies!

Today’s truism. This is the note attached to the container of cookies. I’m only showing the note NOT the cookies!

My friend greeted me with warm hugs, a pretty smile

And a container full of fresh, home- made cookies

Which are stowed away in the freezer

In an undisclosed location

I felt slightly normal

Then I cleaned up around the house

Began marinating the ginger/lime chicken

Patched things up between Ike and me

And the Hubs and me

Continued reading Learning to Speak Alzheimer’s too.

Tonight I just want to feel the Hub’s arms around me

And enjoy the refreshing circulation of our new air conditioner

Maybe go for another bike ride

I’d also like to laugh

And kind of marvel at the way the Lord got us through another day

And probably eat a cookie too

Shhhhh…

A dozen things YOU can (and should) do to help people dealing with Alzheimer’s

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When this card arrived in the mail, I was so blessed!

When this card arrived in the mail, I was so blessed!

If you aren’t directly involved with someone with Alzheimer’s and dementia, you will be soon enough. Since becoming a very reluctant member of this community, I have been accruing thoughts, advice and opinions on lessons our family is learning along the way.

This is my partial list of observations and I imagine these tips are useful for anyone in a care partner role. If you are a long-distance family member and not involved in the daily care of an impaired person, you will avoid much strife by heeding these simple recommendations.

1. Do not add to the stress level. We realize you have your own life and struggles but if you grouse and complain about how busy you are, we want to throttle you. Ease tensions by remaining calm and kind, that’s what we are trying to do while fighting against a terminal illness.

2. Do not make idle excuses about why you can’t help. Ain’t nobody got time for that. If you are a hindrance to the care of a person with dementia, then you have become a burden. Sorry, but that’s the truth. Deal.

3. Reply to emails. If the care partner took the time to give you an update, the courtesy of a response is much appreciated. At the risk of being too demanding, may I also suggest something more than a one line reply? Tensions are high enough. You sacrificing your time to write a paragraph of communication will bless those in the midst of trouble.

4. If you don’t believe them, come find out yourself. Yes, it’s hard to even imagine a loved one having such tremendous difficulty with the simplest tasks. True, it is physically painful to hear of the almost hourly decline but suck it up. Second guessing people is useless and if you are suspicious, then spend time with the person and pay attention to the signs and clues that there really is a problem.

A message from a superbaby/ministry-minded olive shoot.

A message from a superbaby/ministry-minded olive shoot.

5. Encourage – I can’t tell you how much it has meant to me to receive frequent text messages from my OS saying, “You’re doing a great job, Mama!” It’s like a cookie to my soul and I gobble it right up. I know it has meant a lot to the Hubs to hear me inquire if he needs me with him to do something.

6. Don’t make suggestions on additional things they could do. For example, the Hubs and I have spent over 10 hours a day individually attending to our loved one’s needs. Even the mere suggestion that we might just run over and give this person daily medication is asking too much.

7. Listen. If a family member opens up to you and invites you into their hurt and pain, find the time to empathize. If you don’t have time to listen at that moment, offer another time when you can talk. I have noticed that care partners need to talk and unload. Once I get started, it’s hard for me to stop.

8. Contact the care partners. Appreciate their help. If you are unable to be there, then think of things you can do to acknowledge the enormity of the task. We are weary and thirsty and rarely get any appreciation from the person we are assisting. Usually we get just the opposite, quite honestly.

9. Contact the brain-diseased individual. Make all efforts to be in that person’s life. It’s kinda not about you, btw.

10. Educate yourself. Please don’t tell me you don’t like getting on the computer or reading or any such nonsense. I was reading other things before my life necessitated more education about this disease as well.

I am blessed with loving and caring friends. Here's just one example of the sweet people I know.

I am blessed with loving and caring friends. Here’s just one example of the sweet people I know.

11. Pray. Yes, pray. Lift these people up to the Lord. They are deep in the trenches. A friend sent me this Scripture the other day. Another cookie to my soul.

12. Send cards, be creative. When my grandma had Alzheimer’s, my sister arranged frequent Skype dates with Grandma. I felt reassured when Lorri gave us a virtual tour of my grandma’s assisted living center. The pang of knowing my grandma would never return to her home was lessened when I saw her new dwellings.

Which one of these suggestions resonates the most with you? What would you add to the list?

Remembering a Ranger – a message of wisdom and service – thank you, Colonel Kail, RLTW

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photoIn January, my son sought advice about Ranger School from a man he trusted who had been there, done that way back in 1998. (Massive understatement)*

At the time, Nathan had no idea how treasured this email would become only six months later.

On July 24, 2013, Colonel Eric G. Kail passed from this life into eternity with Jesus after a valiant fight with transitional cell carcinoma. Amidst tears of sadness, Nate, the Hubs and I were reminiscing about Eric’s impact on our lives. During that phone conversation, our son casually mentioned this email and began to read it to us.

With my (now) Ranger’s permission, today I share this email as a sort of eulogium to a great man. Even if you’re not in Ranger School, my hunch is you will appreciate the insightful words written by a man of great honor, Christian faith and wisdom. Eric would get a kick out of knowing he was featured again in my blog! He was always such an encourager.

Here’s the email…

Nate,

Congratulations on all you’ve accomplished so far, and for snagging a Ranger School slot. Thanks for asking, here’s my two cents.

1. Ranger school is not fair, nor are the people who run it. I don’t mean that negatively, but rather just as a fact. I saw far better soldiers than me not make it through the first week due to injury and some were even picked on and singled out until they quit.

2. Try to learn something about yourself everyday and acknowledge the work of your peers. No one likes an overt cheerleader who comes across as trying to get the squad to like them. However, quiet and man-friendly encouragement goes along way.

3. Consistency is key, especially when you are member of squad and not the patrol leader. Spotlighting is only working hard when you are in charge, and it is an ugly thing.

4. Remember the school is designed to get you to your worst point, and then deal with it. So, things like packing list changes and last-minute fragos are by design and not something you should ever let get the better of you.

5. You’ll have moments and days when staying at Ranger School is the last thing you want to do. Two things help. First, always find something (never someone else) to laugh about. Second, you’ll spend your entire army career helping soldiers over come hardship. So, learning how to pull yourself out of despair is a good skill to acquire.

6. Never feel sorry for yourself, although you may want to daily.
Keeping a journal of just a few comments or bullets each day will help you reflect on this when you are back in the real world.933882_621564467863032_1204880649_n

7. Enjoy becoming a dangerous and competent man, but not pridefully. Our society is too quick to put sweater vests and choir robes on Christian men and to domesticate them into mediocrity. We need strong warriors who understand unconditional love and possess the will to manage violence in our defense.

8. Most, if not all of the learning you will accomplish is about yourself and your failures while in Ranger School. You’ll learn some cool stuff, but more than anything you’ll learn the value of never quitting. I had to remain in the elevated push-up position for two hours one evening because some instructor wanted to get an LT to quit. Two hours seemed like an eternity then, but merely a blink of an eye now. Funny thing, I ran into that instructor years later and we had a good conversation on my terms. He was a small, angry man inside and out.

9. On your worst days, remember that your future soldiers and NCOs are counting on you to finish what you completed. Don’t worry if you get injured, that happens to the best of them. But when you show up with your tab, your soldiers and NCOs will know that at least you finish what you start.

10. Soldiers only want to know one thing about you. Will you take care of them or drive them like a rental car. Completing ranger school tells them up front that at least you know what it feels like to be driven like a rental car and are less likely to do it to them.

Hope this helps. I’m very proud of you Nate.

photo copy 3

img_2250* By the way, Colonel Eric Kail was Ranger certified in 1988. He also did some other awesome things like marry a wonderful woman, have two kids and other important things like get a Ph.D. and publish a series on leadership in the Harvard Business Review. Eric served for over 25 years as an Army Field Artillery Officer in both conventional and special operations units. He has several combat deployments, including Operations Desert Shield, Desert Storm, Enduring Freedom, and Iraqi Freedom. Among Eric’s awards include the Bronze Star Medal with “V” Device for Valor. While our family knew Eric as a close personal friend, Eric was most recently the course director for military leadership at West Point.

On behalf of my entire family, Eric, you will be missed but we mourn not as those without hope (1 Thessalonians 4:13-18). See you soon, Colonel Kail.

Other blog posts you might want to check out:

From a West Point grad – written with love and in honor of Colonel Eric Kail

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I met COL Kail while I was just in middle school at Apex Baptist. At that time I had no desire to join the military, wear a uniform or take orders. I just wanted to be a normal guy with freedom and a regular college experience.

You know that saying that says the easiest way to make God laugh is to tell him your plans?

Well I guess God was laughing when I told Him that because I eventually ended up becoming a cadet at West Point. In a strange set of circumstances, the Kail’s had been sent to Korea last moment only to come back to West Point during my time as a cadet.

162938_10150100327385379_7643059_nAt that time I knew he was a good man, but I didn’t know him. As a cadet I went over to the Kail’s house for a little R&R and was able to get to know the family better. What I found was that weren’t just nice, fun people.

They were (and still are) amazing people.

COL Kail especially impressed me because I saw how he interacted with others professionally around campus. I still remember talking about our leadership class with other cadets and they said, “My instructor’s amazing-COL Kail is the man!”

540225_10151141079026038_1658347826_nThey didn’t just think he was cool however.

It was evident that they had a deep respect for him.

One of my friends was amazed that COL Kail already knew the names of his students before they came in. He had memorized them before they ever stepped into the door. That kind of attention paired with his confidence, charisma and humility made cadets (myself included) opened us up to share about ourselves and to learn from his experience and example.

Although COL Kail never formally mentored me, I count him as one of my mentors. His example has inspired me to be a better Army officer, and more importantly a better man and follower of Jesus. Ever since we all found out COL Kail had cancer it always seemed like he and Mrs. Kail were the ones comforting everyone else.

IMG_3623I have been inspired by their abiding trust in the Lord and their belief that God works everything, even things like cancer out for His good and His glory.

That kind of example has been powerful for me to see and I am not the only one.

As I continue my Army career I pray that I may love my future soldiers like I could tell COL Kail loved his.

I pray that I may have faith like him and I pray that I may be a mighty rock for my family one day as he has been for his own family.

I am proud that COL Kail is my friend. And no matter what happens in my own life, I hope that I may be able to set an example as COL Kail has for his family and for everyone around him.To the Kail family, may God bless you and give you peace. You are an inspiration to us all.

John 16:33 “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”

Respectfully yours,

Nathan Winter-Hartley
USMA ’12

Five minute Friday – beautiful

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A few members of my beautiful, imperfect, in process people I call my family.

A few members of the beautiful, imperfect, in-process people I call my family.

Beautiful doesn’t mean perfect –

Cindy Crawford is outwardly perfect

Cindy W-H (me) isn’t…

So when I reflect upon my life

There are plastic times when things on the outside might have looked good or better than they do now

But they were hideous had you looked much deeper

Families are beautiful but a lot of effort

Searching for sparkly pretties in a heap of ashes – much effort required

It is messy work, I have been warned

The pastor said something the other day that has resonated with me profoundly this week –

Here's something imperfect and not so beautiful. I had a few unbeautiful moments when I discovered this in my fridge.

Here’s something imperfect and not so beautiful = sideways milk. I confess I had a few unbeautiful moments when I discovered this in my fridge…

Just remember the people you are with, they are in- process too.

And he said this too, which I wrote down because it sounded so good.

Life for those who love Jesus is not like a Russian novel that just ends in horror and despair. It has a purpose that will work together for good, the Lord’s process. “Remember,” my pastor said, “that He’s strip-mining you, He’s designed us to live through struggles, pain, confusion, weakness and suffering. Your relationship to God determines the meaning of your life.”2013-07-04 10.45.52

Something beautiful will result for those who love Jesus – we belong in the next world. This isn’t science fiction. This is promise.

Father, I seek to appreciate the beautiful, imperfection of this earthly home and can’t wait to see all the treasures and sparklies in the world ahead.

5minutefridayThank you Five Minute Friday for giving me a chance to write about this word! Check it out and join the writing explosion!

Lessons I have learned from my children – guest blogger

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For those of you who have children, do you believe that God gave you the exact child(ren) He knows you should have?

My first child was several years old when I came across this question. It meant so much to me.  Why? Because prior to it, I often questioned God, “Why?! Why this child for me? I’m failing!”

100_7271My child is The Strong Willed Child. And me – I tend to be too laid back and easy going. That didn’t seem to me like a good mix. Surely God made a mistake?

Oh but wait. God doesn’t make mistakes. Ever. Uh oh.

In reading that question for the first time – that God gives us the exact children He wants us to have, I began to see my first child differently. It became, “What is God trying to teach me by giving me this child?”

I’ve never looked at my children the same since changing my mindset/attitude.

One thing I’ve learned is that the lessons God is teaching me through my children constantly evolves.  As soon as I think I have one more thing figured out and ready to cross off my “lessons learned” list, God throws another one at me. The potter refining the clay.

I have 4 children, each one so different from the others. Maybe the variety because God has so many, many things for me to learn!

Tabitha, or “Tabby” as she prefers to be called, is my oldest child and is an 11-almost-12 year old.  Tabby is very “strong willed” or “weak willed” according to Charlotte Mason, used to be very hyperactive, and loves silly things and people. She is a voracious reader, is very musical (plays piano and enjoys singing), loves photography, and has a compulsive need to craft almost every day. (Tabby makes all sorts of things – like chocolate lollipops, soaps, tie dyed baby clothes, beaded jewelry, etc. – and sells them through her blog The Craftsy Kitty in memory of her angel sister Lilly.)Tabby and Lilly

I am absolutely amazed at how a person’s temperament comes through so early – even in the womb. Tabby was my child that was the most aggressive when I was pregnant. Towards the end of my pregnancy, at the fetal monitoring test, most of the time was spent with her (from inside me) kicking off the belts strapped on me.  The nurse commented that my baby was making it clear she would hate car seats and being constrained in any way. I was skeptical. But the nurse was right!  From the first second I first strapped Tabby into a car seat she screamed and fought. That continued way too long.

Tabby quickly learned to use her screaming and crying to manipulate me. I was completely baffled by this child as she was so different than me!  Oh I did have experience with her type though, my mother and one of my brothers are also very strong personalities like her. But there I was struggling not to be bossed around by a small child. (Now that’s just embarrassing to admit!)  Tabby made it clear from the beginning that she did not care for authority. That has been, and continues to be, her biggest struggle in life.

So how does a “wimpy” mama deal with a child like that? By spending much time in prayer begging for wisdom. By learning to be a stronger person. By standing firm in what she believes is good and right – and by sticking by it, no matter what storm comes. By trying her best to be consistent in all things, no matter how wearisome it becomes. By loving her daughter even when it feels like the battles will never end.

So am I now “super” mama who has all this perfected now? NO. But looking back, I can see how far I’ve come. Not only does my child no longer control me, but I have grown in my relationships with other people. I don’t often let others push me around anymore. I’m not so timid about speaking up and sharing my beliefs. I don’t worry as much about what people think.  And I’ve gotten really good at asking God for help! (I was a single mom raising Tabby on my own for several years and came to see her as the child that God and I were raising together. I loved this feeling.) I feel like I’ve become more creative too, in working with Tabby in teaching her to use her strengths for good.

Though of course every time I think I have something figured out then BAM! some new situation arises with my creative girl to send me back to my knees in prayer.

100_8191In my son Hunter, 4 years old, I discovered that raising boys really are different from girls.

Really different.

Whereas girls tend to be sneaky and passive, a boy is just in your face with his disobedience. Ah, that makes life so much easier. 🙂

Hunter is my affectionate child – both physically and verbally. He gives me hugs throughout the day and tells me he loves me a dozen times. I grew up in a home that was not this way so having Hunter around reminds me how important this is. He often asks me “Mama do you love me?” It reminds me of our relationship with God. God is always there loving us, no matter what. Do we tell God we love him?  Do we act like it?

I homeschool my children and for about the last 2 years, our homeschool day starts with me working exclusively with Hunter. Honestly I had never planned to sit down and “do school” with a really young child, but you see, God has given Hunter an amazing brain. I almost can’t keep up with it at times. School time is one of his favorite times of the day and he’s disappointed on weekends because we don’t have school. He LOVES math and science especially, but delights in learning almost anything. He is a “workbook kid.” It’s not unusual for me to hear “Mama, can we please do an extra page of math?” when I’m ready to move on. I have had to really stretch myself to keep up with this 4 year old’s education! And I’m proud to say I have finally learned how to hook up parallel and series circuits successfully, something which I never “got” in government school science class. Hunter loves electricity, plumbing, building, appliances, anything with a motor. Everyday he will suddenly say “I have to draw!” and he will draw house plans or a washing machine with all it’s wires and plumbing showing, etc. He even has dreams about this kind of stuff!

This is Hunter's dream dial! What a clever fellow!

This is Hunter’s dream dial! What a clever fellow!

I find I continue to be amazed with Hunter’s enthusiasm for learning and often feel ashamed I don’t always have that same enthusiasm for opening my Bible and learning more about God. This is something I pray about. Hunter delights in so many aspects of God’s world and it has taught me to appreciate and wonder at more things too.

My third child is a little girl named Lilly, who now lives with Jesus. She is my “most famous” child as people from all over the world know about her, through my blog. Lilly lived for 17 months (7/4/10-12/15/11). She had a genetic disorder called Trisomy 18. More than half of the babies with Trisomy 18 die before or at birth.  Of those that survive birth, most die in the first 2 months of life outside the womb. Lilly was one of only 5-10% of birth survivors that lived to see her first birthday. She was a fighter! And she was aptly nicknamed “Little Firecracker” by hospital doctors and nurses when she surprised them by staying alive after birth (being born on July 4th.)

100_2080We first learned that Lilly may have Trisomy 18 during a routine ultrasound when it became apparent that she had holes in her heart, clenched hands, and several other “soft markers.”  That is when I learned to be praying even more for my children. I begged God to allow me to bring Lilly home from the hospital. Not only did He grant my plea, but allowed us to have and hold Lilly for 529 days. Lilly’s life was a rollercoaster ride and I only was able to hold on tight by God’s mercy. Many days were very good.  But other days were terrifying.  She almost died in front of my eyes 5 times. I prayed many desperate prayers for her – and for me, just to be able to breathe. My biggest fear was in her actually dying and during her life I prayed that God would help us through that when it came. The most horrific thing in my life for me was finding Lilly dead one evening. (She died during a nap.)  But I survived. I felt God holding me through it. Through Lilly, I learned firsthand that God will truly never leave us nor forsake us. How do people survive something like this without Him? I can not fathom.

Lilly had a beautiful smile and laugh. She loved her family and her daily routines. She loved experiencing new things. She made it very clear she did NOT like hospitals! Nor medical equipment in general. She was physically and mentally delayed. I sometimes feel like children like that are closer to God that we are. As she amazed me, and others, over and over again, I knew for sure that God truly has a plan for each of us. I also learned that no matter how young a person is, they can have a huge influence on others – even complete strangers. God never makes mistakes. Though many in the world saw Lilly as broken, I know she was perfect. Her life inspired me to reach out to others, especially Trisomy or angel families, and to begin The Lilly Memorial Project.

When Lilly died, she took a huge piece of my heart with her. However, not long after she passed away I was shocked to find out I was pregnant. (As I type this I still feel surprised and wonder “What will God do next??!!”) Our Solomon was born 9 months – to the day – that Lilly died.  Is that not a “God thing”? Our rainbow baby, Solomon, has brought more healing with him than I thought possible. (A “rainbow baby” is a baby born after the loss of another child. A rainbow is a thing of beauty after a storm, even among the destruction of the storm.) I had many fears of losing this boy while pregnant and then after his birth. I do not often live in this fear anymore, but I do understand fully that every breath we draw is a gift from God.

100_3491Solomon is his own very unique little person.  For the first months of his life he wanted to be held almost all the time, even at night.  I had never had a baby like this and admit I became very frustrated at times. (It did not help that we moved only 3 weeks after he was born and I had a house to unpack!) My frustration made me feel very guilty too, because I knew this baby was a blessing from God and I was so thankful for him. But then I read something that made me see Solomon’s almost constant clinging to me as a beautiful illustration of God love.  Just as I was holding Solomon so much (and still do a lot!), God holds me. As my arms are around my baby, God is holding me. Constantly. He never lets go.

I thank the Lord daily, even many times a day, for my children. We have no control over when the Lord will call them home. We do not know God’s future plans for them. But as long as we are blessed to have them, we can love them, appreciate them, and be thankful to God for His goodness in allowing us to have them.

Lisa blogs over at Pray4Lilly. She spends her days homeschooling, making to-do lists that never get completely done, talking to God, and stealing moments here and there to read.

Here’s the blog post I wrote about the day of Lilly’s passing. She was a very special little girl. Thanks Lisa for your heartfelt thoughts and perspective!